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Dying To Live: A Behind The Scenes Look At Cancer's Financial Impact

State's Largest Health Insurer says each year nearly 450 Alaskans are denied Coverage due to Pre-Existing Conditions

By Matthew Simon

Channel 2 News

7:33 PM AKDT, July 25, 2012

ANCHORAGE, Alaska

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It's a growing debate, as national attention has been intently focused on health care: the denial of medical coverage based on pre-existing conditions.

 
The state's largest health insurer, Premera Blue Cross Blue Shield of Alaska, confirms to Channel 2 News that approximately 420 applicants in this state are denied individual coverage every year after revealing pre-existing medical conditions.
 
While most of Premera's roughly 101,000 Alaska customers receive employer-provided insurance, Premera senior manager Eric Earling says more than 9,000 other applicants buy individual plans.

About 1,800 additional Alaskans have applied for individual insurance plans this year alone, and, according to Earling, roughly 250 of those applicants have been turned away due to pre-existing conditions.

“The critical issue is trying to create balance so all these costs are able to be covered and the premiums are kept under control as much as possible for all of our customers,” Earling says.

Earling estimates another 160 Alaskans will be turned away by Premera before the end of 2012 due to pre-existing conditions, which leaves applicants with only one other avenue for coverage.

"There's a high risk pool that's specifically designed to be able to offer coverage to the folks with specific medical needs," Earling says.

That "high risk pool" is known as the Alaska Compressive Health Insurance Association, or ACHIA.  It's high-risk coverage but it comes at a high price and some fine print.
 
The ACHIA application, obtained by Channel 2, also shows a "pre-existing condition exclusion," stating there is a chance that "expenses incurred...during the first six months...of coverage are not covered." 
 
This exclusion has left many patients confused, wondering why expensive high-risk insurance aimed at assistance in one's time of need - is also turning applicants away.

Earling says Premera's emphasis is on personal responsibility and encouraging applicants to obtain coverage while still healthy, as it is the only clear way to guarantee long-term care.

"The specific issue there is you want to encourage people to buy and maintain medical coverage," says Earling.

Struggling Financially

On an overcast July night, Wendy “Bliss” Snipes greeted friends at Hill Top Ski Area’s Chalet, each receiving a big bear hug.

"Oh, my goodness. Thanks for coming. How are you?" Snipes said, her voice one of elation, as she greeted each attendee. All were there to participate in a "Benefit for Bliss," a fund raising effort thrown by friends to help Snipes as she struggled financially in her fourth battle with cancer.

"Just the turnout,” Snipes exclaimed holding back tears, “The amount of love."  
 
Snipes was no longer in remission. Her blood cancer had returned, she had recently learned. And this time, it is an extremely rare form called Periperal T-Cell lymphoma.

Snipes and her husband have been struggling to make ends meet financially. Bliss is no longer able to work consistently, and the family's income has plummeted.

“It's cut our income into a single earner income rather than a double.  We were both working full time before,” said Snipes' husband Chris. 

Chris Snipes said the motivation for the benefit was to raise some money to cover expenses that Wendy's insurance would not, including the cost of an upcoming four-month-long hospital stay in Seattle.

“I knew that wasn't going to be possible without some sort of help,” Snipes admits.

Despite all the emotional and financial struggles, the Snipes consider themselves lucky. Wendy's genetic blood type is a rare, one-eighth Tlingit. It's both a blessing and a curse. Her rare genetics are the primary reason a suitable blood donor has been so hard to come by. It's also the reason Wendy now qualifies for enrollment in a unique clinical trial.

Once chemotherapy completely wipes out her blood system in the coming months, she will need a bone marrow transplant. Matching bone marrow will either be donated by one of Snipes' parents or potentially could come from available umbilical chord blood.

“The goal being it will overtake her weakened blood system and replace it,” husband Chris explains.

The treatment is not without danger, but Snipes says there is comfort in knowing it will not come without the burden of many additional medical cost.  Snipes' Tlingit lineage qualifies her for Indian Health Services insurance in Alaska.
    
"I feel for anybody that doesn't have good insurance and doesn't have a good grip on having to pay it," Wendy says.

Snipes has had to battle debt from a lack of insurance in the past. Still staining her credit report are cancer treatment bills from when she lived outside of Alaska and had no access to Indian Health Services. She sympathizes with others who are not as fortunate.

"It's like you're already fighting something. Why do you have to fight it again?" Snipes asks in frustration.

Neither financial or medical setbacks, however, seem to deter Snipes and her positive attitude. Her vigorous fight for life continues. While she finds comfort in making video diaries about her life, her thoughts and her continuous struggle with cancer, she hopes her three-year-old daughter Avery never has to watch them without her.
 
"I don't want anything to be left unsaid," Snipes says matter-of-factly.

The video diaries serve as an emotional "insurance policy." One that Snipes never wants to cash in on. 

Snipes says she still has so much more to say and remains confident time is on her side. Her husband echos the same sentiment.

“She’s going to get through this after the transplant," says Chris. "Hopefully the blood system takes hold and is a healthy one and solves the cancer issues from here on out, and we'll live a happy, healthy life,” Snipes says.

The "Benefit For Bliss" raised more than $17,000. The Snipes say the money should be a big help in defraying expected costs. The couple travels to Seattle for the blood replacement next month.

Email: Matthew Simon.