Life hasn't been easy for Jay Jay Martin and his parents Dustin and Lesley so far, but they all deal with it.
A normal day for Jay Jay includes seven changes of his catheter and taking a daily regiment of antibiotics to keep him as healthy as possible.
His family is keeping him healthy for that one day, that day where he will get a new kidney and live his life like any other young boy would.
The transplant will hopefully be in four or five years, but for now Jay Jay is as much like any other kid as he can be. He's obsessed with Sesame Street, he's got a smile that can light up a room and he has an impressive array of toys to play with.
Jay Jay suffers from Prune Belly Syndrome. Issues with his abdominal muscles causes problems with his urinary system which is why he has to have a catheter every three hours. It's a rare disorder, 1 in 40,000 newborns have it and most of the time, almost 97%, it happens in young boys. The disorder is characterized by a distended belly that is wrinkled, much like a prune.
The walk is tomorrow in Downtown Roanoke in the SunTrust Plaza. Organizers say they hope to raise $45,000 for the Kidney Walk, but are just short of it as of Friday night. But according to the website for the walk, Martin's family has raised the most money; right around $2,500.